This story hasn’t even started and already it’s wrong.
John Lee Clark, whose “Touch the Future,” is out in paperback, would prefer not to be identified by the photograph at the top of the story. The St. Paul native, who is DeafBlind (the terminology and spelling he prefers), won a National Magazine Award for an essay called “Tactile Art” and is a leader in a language movement called Protactile, which his book is the first to cover.
Rather than forcing DeafBlind people to adapt to the seeing/hearing world, Protactile is based on their ability to understand through touch; that’s one reason Clark says bumping into things is actually good. Because touching won’t help a DeafBlind person appreciate his photo, Clark prefers a description such as the one offered in “Touch the Future”: “Short hair of feline softness. Warm and smooth hands. A scent of patchouli. Flutters betray his exhilaration.”
In an email exchange with Clark, 45, I learned what he’s working on now (he and wife Adrean are pursuing doctoral studies in Montreal while their three kids remain in St. Paul) and why, as his book says, DeafBlind people want to change the world.
Q: Can you talk about what kinds of good trouble you hope the book can stir up and if you feel like there has been progress?
A: DeafBlind people, for whatever strange reason, do exist. Historically, this fact has been denied in many ways — placed in a bubble. So, expressions of our existence have not gone far in the past. But now we’re seeing extraordinary expressions of our existence, such as through the emergence of a new language.
And, to answer your question: absolutely. We have Protactile plays, art shows. We’re learning all the time what Protactile spaces are like, in terms of the built environment, where tables and chairs go, or how to run a meeting, or do a class. This fall, I’m directing a DeafBlind living history project. Research projects all over. The one I am most excited by is www.deafblindkids.org.
Q: Is it accurate to say that building a world together, with the DeafBlind and sighted/hearing communities, is a goal of the book and the Protactile movement?