The hair-pulling disorder few people have heard of -- trichotillomania -- gained notoriety last week after a Blaine girl posted a YouTube video about her frustrations with the disorder and got the attention of Motley Crue rocker Nikki Sixx.
Turns out, there is another local connection to the disorder; the University of Minnesota's Dr. Jon Grant is one of the top researchers nationally in the search for treatments. Grant said his research is funded out of his U of M budget, because there isn't a lot of public grant money available for this type of disorder.
"It never seems life-threatening to people, but the people who suffer from it, their quality of life is impaired," he said. "You're surrounded by people who have it and nobody talks about it. It probably affects about 2 percent of the country. People can pull hair from anywhere so you don't always notice it."
An earlier study found that a dietary supplement reduced symptoms in 55 percent of people with the disorder.
"That is pretty good, but not good enough," Grant said. "Historically, people used antidepressants and they never really worked. So we've had to think outside the box a little bit."
Now Grant has an ongoing trial using the generic drug naltrexone -- the same drug he has studied in the treatment of other impulse control disorders such as compulsive shoplifting. Most signs point to trichotillomania stemming from a chemical problem in the brain. The disorder does seem to run in families, he added, and is more common among women. Adolescence is a common starting point.
"Even when it runs in families, which it does to some extent, the young person who is doing it has no clue that her mother was doing it, because her mother was doing it in secrecy too," Grant said.
The story of 12-year-old Chloe McCarty sounded familiar. Stress often makes the disorder worse, so it didn't surprise Grant that her symptoms would emerge as she made the often stressful transition to middle school.