Secretary of Education Betsy DeVos recently proposed cutting all federal funding for Special Olympics, the international athletic program for people with developmental disabilities. Although the Trump administration has now backed off this plan, DeVos argued correctly that Special Olympics is one of the best-funded programs for people with disabilities in the private sector.
Good public policy suggests that government dollars and private funding generally should not overlap, so that they can better meet the widest range of needs.
As a person with a disability who has followed disability issues my entire adult life, I think DeVos actually was right, but for all the wrong reasons. Special Olympics, however beloved, are outdated.
These funds should be redirected toward more cutting-edge programs that lead to greater autonomy and self-direction for people with disabilities rather than to sprinters and shot putters.
People with disabilities, including those with intellectual disabilities, have been marginalized by the mainstream throughout history. The Kennedy family, inspired by daughter Rosemary Kennedy, founded Special Olympics with the noble goal of promoting esteem and meaning for those with such disabilities.
But that was some 50 years ago, and the world is much different for people with disabilities today. The Rehabilitation Act and the Americans with Disabilities Act have changed our standards for inclusion. Universal design and assistive technology have struck down many of the barriers that made a separate program seem like the best option for providing a needed path to self-esteem.
Today, we can meet a higher standard for our peers with disabilities, one that includes a more organic integration into society and greater self-determination for everyone. Even persons with profound limitations can recognize condescension and insincerity when directed toward them. We can move beyond this.
The politics of advocacy for people with developmental disabilities has always had a discomforting characteristic: Most advocates are acting on behalf of those with disabilities. Seldom are the advocates people with disabilities themselves. However well-intended, this is also paternalistic. And even when people with intellectual disabilities are given the opportunity to share their preferences and desires, there may be real concerns about how reasoned and informed those preferences are.