The rising cost of insulin became headline news in Minnesota in 2017 after Alec Smith, just 26 years old, died when he was kicked off his mother's health care plan due to his age, and he cut back on his insulin to make it last longer. There were calls to lower the price of insulin or even to provide people like Alec with free insulin. Five Republican members of the Minnesota Senate have now proposed what they call a "simple and elegant solution": a state program that would provide emergency insulin through an already existing network of fee-for-service pharmacies ("Let's find a solution to the insulin crisis," May 30).
There is a better solution: Give everyone with Type 1 diabetes access to Medicare at the time of diagnosis.
People with Type 1 diabetes need insulin to survive. Without it, they can become ill within hours and die within days. To deny these people access to insulin is unconscionable. But access to insulin is not the whole solution . The day-to-day management of Type 1 diabetes is complex, time-consuming and expensive. Besides insulin, people with diabetes need glucose-testing supplies, insulin pumps, syringes and infusion sets. And, importantly, they need ongoing, expert, coordinated care. A diabetes crisis can land a person in the ICU. This is expensive. But most of the cost of diabetes (both Type 1 and Type 2) is related to the treatment of and disability from long-term complications. These are reduced by careful management of the disease over time.
Why provide this for Type 1 diabetes and not another disease? Type 1 diabetes has unique features that make it an ideal disease to start with:
1. It is definable. It usually has an abrupt onset with classic signs and symptoms, and there are standard laboratory tests that confirm its diagnosis.
2. It is relatively uncommon. Just 5 to 10% of people with diabetes have Type 1.
3. It is not a "lifestyle disease" and is not related to body weight. This may make funding its care less controversial.
4. It usually begins early in life and so has the potential to cause years of suffering, productivity loss and expense.