It was early afternoon on the first day of October at the Holtz Children’s Hospital in Miami, and Elizabeth Foley’s room was quiet.
Amy Foley, Elizabeth’s mom, leaned over her 2-year-old daughter’s crib-like hospital bed.
“We’re gonna do some music,” she said. “And then you’re going to be in a great mood.”
The prospect of a “great mood” seemed unlikely at the time for the Foleys. Elizabeth suffers from a genetic condition called Alagille syndrome that, in part, affects the functioning of the bile ducts in the liver. She was just waking up from anesthesia after a stress test on her heart for a potential liver transplant.
But Stephanie Epstein, the music therapist at the hospital, has her methods, starting with songs from toddler fan-favorite films like Frozen and Moana. And then there’s the ocean drum, filled with small metallic beads that whoosh across the material to create soothing waves of sound.
Within a few minutes, Elizabeth was clinging to a toy maraca with one hand while using the other to pluck at the strings of Epstein’s three-quarter-sized guitar.
Epstein, who started the music therapy program five years ago at Holtz — part of the UM Jackson Memorial Medical Center — chose the instrument, smaller than a standard guitar, because it is easier to hold while weaving between nurses, doctors and the type of droning and beeping machinery that surrounded Foley’s bed.
That’s crucial for Epstein because she doesn’t just play to relax patients before and after treatment, as many music therapists do. Research has shown that music can reduce pain and anxiety in children during medical procedures, so Epstein also plays when it counts most.
That sometimes means doctors can use smaller doses of sedatives or even forgo the drugs, which can be especially harsh on younger patients.
Not having to sedate a child, Epstein says, also means saving time and money. The children don’t have to fast for 12 hours. There’s no need for an anesthesiologist. There are no drug side effects, and no need for intubation, when a plastic pipe is placed into the windpipe to make sure airways remain open.
“It’s better for the patients and the staff,” Epstein said. “Just the overall mood of the room relaxes.”
The administration at Holtz Children’s Hospital is sold on the concept. Hamilton Clark, chief executive, said the music therapy program is “an integral part of our care team.
“Children need specialized healthcare in every way, and we know that music therapy plays a big role in the healing process for our patients,” Clark said.
For Epstein, it’s more than just a job. She views being a music therapist as a privilege: developing real, personal relationships in the process. Epstein is in the room when pediatric patients might need encouragement to sit up or stand for the first time in weeks. She uses music to help push them through physical therapy and rehab.
“I get to give them something positive to latch onto, help them express themselves and give them a positive coping skill,” Epstein said. “I get to be the person that helps them feel like a kid again.”
Halfway through the first song Epstein played in Elizabeth Foley’s room — “Let it Go” from the Disney film, Frozen — she paused, walking to the door to make sure a nurse didn’t need to come in and check on them. When she returned to Foley’s bedside and started playing again, the little girl smiled her first smile of the day.
Said her mom: “She soothes me, too.”
That’s by design. One of the benefits of music therapy, beyond reducing the need for sedation, is that it calms everyone in the room: patients, family members and even staff members.
One example was when Elizabeth Foley needed a “PICC line,” or a soft catheter tube that is inserted through a vein in the child’s arm, leg or neck, to deliver medicine and nutrition.
The nurse warned Amy Foley that Elizabeth would likely scream during the procedure, Foley said, but then Epstein showed up with her guitar. Elizabeth was so quiet, Foley said, that other nurses were coming in to meet the girl who didn’t cry during the procedure.
For the Foley family, and the nurses and doctors in the room, the focus on music helped. People were even singing along as Epstein played, Foley said.
“We know she’s going to have more surgeries in the future,” Foley said. “To limit the amount of anesthesia, that’s a big blessing for us.”
Music has long been a blessing for Epstein, 32. She traces music back to childhood, starting with piano lessons, then voice lessons and eventually learning how to play the flute. Epstein said she always knew she wanted to do something with music, but she wasn’t sure what.
“I knew I was very interested in psychology and counseling, so I started researching music and psychology and I found music therapy, which was really a perfect marriage between my two passions.”
Epstein said her job is emotionally demanding — sometimes uplifting, other times, exhausting and sad. The hospital cares for some very sick children, she said. But Epstein says that being able to help others is a healing process for her, too.
“If I’m having a rough day, sometimes I just want to just sit in my office and seclude myself,” Epstein said. “But the second that I get up and I get out there and I work with these incredible patients and families, automatically my day is better.”