Andy Marso was a college kid with a bright future. He left Minnesota to study journalism at the University of Kansas. He was three weeks away from graduating and had a job waiting as a sportswriter for the local paper. Then one day he literally felt a shiver up his spine.
Andy thought it was just the flu. What started as a fever and shivers quickly turned into numbness throughout his body, a parched throat and ugly purple blotches on his arms. Within fewer than 24 hours, he was unable to walk and was rushed to the university health center, then to the hospital.
At 22, Andy never had suffered a major illness or injury. He didn't smoke and generally was in good health. Yet that didn't stop him from getting a meningitis B (MenB) infection. Andy eventually developed sepsis and pneumonia, his lungs failed, and blisters that would burst and cause additional infections covered his skin. Andy spent 141 days in the hospital, during which he suffered painful sessions to remove decaying skin, and doctors amputated all of his digits except his right thumb.
While it is not known how Andy got sick, it is possible that something as simple as using a dirty plastic cup in a bacteria-rich college dorm room combined with a weakened immune system from lack of sleep could have resulted in the infection. College campuses are a focus of prevention efforts for meningococcal disease because of the increased incidence of the disease during adolescence and young adulthood, as well as transmission from crowded living conditions and social behaviors common among college students.
Andy contracted MenB in 2004 and made it through this horrific experience with his life. Unfortunately, Emily Stillman wasn't so lucky.
A sophomore at Kalamazoo College in Michigan, Emily called her mom one Friday in February 2013 to tell her she had a terrible headache and was tired. By Sunday, Emily had died from MenB.
The circumstances surrounding Emily's death are particularly devastating and infuriating, because her death was preventable. Today, the U.S. has an approved vaccine for every type of meningitis except type B. One MenB vaccine, Bexsero, has been approved by regulators in 34 other countries, including the European Union, Australia and Canada. Yet, the vaccine hasn't been approved here.
This is a failure of leadership and the result of an outdated regulatory process.