I figured I'd better beef up my knowledge of hockey and hemophilia before viewing, "Thicker Than Water," at the Minneapolis/St. Paul International Film Festival. I didn't need to. Turns out the documentary, directed by former Minnesotan Bradley Rappa and starring his now 21-year-old nephew, Tony, really isn't about either.
Before explaining, I'm issuing a SPOILER ALERT, a link to the film (www.tiny.cc/7xywh), and a suggestion that, should you attend, pack plenty of Kleenex.
The film features Tony Rappa at age 11, the kind of kid who parents, teachers and 11-year-old girls adore. He's sweet-faced and loving, cheery and wise, without being irritating. Mostly, he's free of self-pity, a tall order considering the boy has potentially fatal type A hemophilia and is going to play hockey anyway.
"At 6, he wanted to play hockey and that was like, 'Oh, my gosh,'" says Tony's mom, Lori, a vibrant presence in the film, and in her son's life. OK, you can play, she tells him, but only in the non-checking mites league.
"Uncle Brad," who said he was born with a camera "surgically connected" to his body, tracks every move of his nephew's 11th year, as Tony gears up to play his final hockey game and we cringe as boys, being boys, ram into each other anyway, despite the rules.
"Kids in our age don't hit very hard, so it's fine," cherubic Tony assures us.
Tony -- Lori and Scott's first child -- was born on Labor Day in 1989 -- "the greatest day" that quickly turned into "the saddest day," Lori tells the camera. Hemophilia, typically inherited, is a rare bleeding disorder in which blood doesn't clot normally. Even falling off a bicycle can lead to continuous bleeding and the risk of organ damage. But the Rappas knew that. Lori's brother, John, also had hemophilia. He died in his mid-30s of HIV and Hepatitis C caused by tainted blood.
Tony, now a senior at the University of Minnesota majoring in strategic communications, is on an experimental hemophilia drug, but he refuses to be defined by his condition. He lifts weights, runs and snow skis (wearing a helmet), pulls a 3.5 GPA and works at the Minnesota Daily.