Suzanne Plunkett, Associated Press
Dying: Go gentle -- but not just to save money
- Article by: BILL KELLER
- New York Times
- October 10, 2012 - 10:07 AM
One morning last month, Anthony Gilbey awakened from anesthesia in a hospital in the east of England. At his bedside were his daughter and an attending physician.
The surgery had been unsuccessful, the doctor informed him. There was nothing more that could be done.
"So I'm dying?" the patient asked.
The doctor hesitated. "Yes," he said.
''You're dying, Dad," his daughter affirmed.
''So," the patient mused, "no more whoop-de-do."
''On the other side, there'll be loads," his daughter -- my wife -- promised.
The patient laughed. "Yes," he said. He was dead six days later, a few months shy of his 80th birthday.
When they told my father-in-law the hospital had done all it could, that was not, in the strictest sense, true. There was nothing the doctors could do about the large, inoperable tumor colonizing his insides. But they could have maintained his failing kidneys by putting him on dialysis. They could have continued pumping insulin to control his diabetes. He wore a pacemaker that kept his heart beating regardless of what else was happening to him, so with aggressive treatment they could -- and many hospitals would -- have sustained a kind of life for a while.
But the hospital that treated him offers a protocol called the Liverpool Care Pathway for the Dying Patient, which was conceived in the 1990s as a more humane alternative to the frantic end-of-life assault of desperate measures. "The Hippocratic oath just drives clinicians toward constantly treating the patient, right until the moment they die," said Sir Thomas Hughes-Hallett, who was until recently the chief executive of the center where the protocol was designed.
The Liverpool Pathway adopts many of the practices of hospice care into a hospital setting, where it can reach many more patients approaching death. "It's not about hastening death," Sir Thomas told me. "It's about recognizing that someone is dying and giving them choices. Do you want an oxygen mask over your face? Or would you like to kiss your wife?"
Here in the United States, nothing bedevils our discussion of health care like the question of when and how to withhold it. The Liverpool Care Pathway or variations of it are now standard in most British hospitals and in several other countries -- but not ours. When I asked one American end-of-life specialist what chance he saw that something of the kind could be replicated here, the answer was immediate: "Zero." There is an obvious reason for that, and a less obvious reason.
The obvious reason, of course, is that advocates of such programs have been demonized. They have been criticized by the Catholic Church in the name of "life," and vilified by Sarah Palin and Michele Bachmann in the pursuit of cheap political gain. "Anything that looks like an official protocol, or guideline -- you're going to get death-paneled," said Ezekiel Emanuel, a bioethicist and expert on end-of-life care. Humane end-of-life practices have quietly found their way into cancer treatment, but other specialties lag behind.
The less obvious problem, I suspect, is that those who favor such programs in this country often frame it as a cost issue. Their starting point is the arresting fact that a quarter or more of Medicare costs are incurred in the last year of life.
No doubt, we have a crying need to contain health care costs. The Affordable Care Act -- Obamacare -- makes a start by establishing a board to identify savings in Medicare, by emphasizing preventive care, and by financing pilot programs to pay doctors for achieving outcomes rather than performing procedures. But it is barely a start. Common sense suggests that if officials were not afraid of being "death-paneled," we could save some money by withholding care when, rather than saving a life, it serves only to prolong misery for a little while.
But I'm beginning to think that is both questionable economics and bad politics.
For one thing, whatever your common sense tells you, there is little evidence so far that these guidelines do save money. Emanuel has studied the fairly sketchy research and concluded, with the possible exception of hospice care for cancer patients, measures to eliminate futile care in dying patients have not proved to be significant cost-savers. That seems to be partly because the programs kick in so late, and partly because good palliative care is not free.
When I asked British specialists whether the Liverpool protocol cut costs, they insisted they had never asked the question -- and never would. "I don't think we would dare," said Sir Thomas. "There was some very nasty press here in this country this year about the Pathway, saying it was a way of killing people quickly to free up hospital beds. The moment you go into that argument you might threaten the whole program."
In America, nothing happens without a cost-benefit analysis. But the case for a less excruciating death can stand on a more neutral, less disturbing foundation, namely that it is simply a kinder way of death.
During Anthony Gilbey's six days of dying, he floated in and out of awareness on a cloud of morphine. Unfettered by tubes and unpestered by hovering medics, he reminisced and made some amends, exchanged jokes and assurances of love with his family, received Catholic rites and managed to swallow a communion host that was probably his last meal. Then he fell into a coma. He died gently, loved and knowing it, dignified and ready.
''I have fought death for so long," he told my wife near the end. "It is such a relief to give up."
We should all die so well.
© 2013 Star Tribune