Reporter Maura Lerner and photographer Joey McLeister began meeting with parents Amy and Jesse Carlsen in January. They spent dozens of hours with the Carlsens at their home in Fargo, N.D., at Children's Hospital in Minneapolis and at the Mayo Clinic in Rochester. They have interviewed the babies' doctors and observed several medical exams, procedures and doctors' meetings. No dialogue appears in quotation marks unless the reporter heard it directly.
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