Caring for a son with cerebral palsy, Fardosa Ibrahim wants other Somalis to move past the shame and isolation of dealing with people with disabilities.
Fardosa Ibrahim rubbed her 4-year-old son Khalid hand as he rested in his bed. Fardosa is a educated nurse from Dubai and originally from Somalia, and son has cerebral palsy. She is try to help educated other members of the Somali community on how to seek help with their children with disabilities . ] JERRY HOLT ‚Ä¢ firstname.lastname@example.org
Four-year-old Khalid Dualeh’s room in an Edina apartment building is as cheerful as it can get. Ribbons hang from the ceiling. A cat, foot, butterfly and flower compete for attention in a black-and-white checkerboard poster on the wall.
But then there is the suction tube coming out of his throat and the constant hum of the machine that keeps him from choking. Despite his parents’ best efforts, Khalid’s room is dominated by a hospital bed, full of plastic intravenous bags and feeding tubes hanging from stands. A chart on the wall tells the various nurses and assistants who attend to him the size of the various tubes that go in and out of him.
Khalid was born with cerebral palsy. For his parents, Hussein Dualeh and Fardosa Ibrahim, refugees from Somalia, an already difficult life caring for him has been made more difficult by the barriers of language, shame and isolation that often accompany people with disabilities in the Somali community. Ibrahim has become an advocate, both for her son and for greater understanding in the Somali community, speaking out about getting the resources that are available to them.
“They feel ashamed, maybe they will hide those kids,” Ibrahim said of others in the Somali community, as she stroked her son’s foot sticking out from a sheet.
The barriers are not unique to Somalis or to Minnesota.
A recent study by researchers at the University of California, Davis, found that children with developmental disabilities in Hmong families, for instance, face significant barriers to receiving services. The obstacles include lack of accurate information, language difficulties, lack of trust and limited outreach.
In 2007, the U.S. Committee for Refugees and Immigrants put out a resource guide for serving refugees with disabilities, pointing out that — in some languages — there is not even a word for disability.
While there are no reliable figures on the number of Somalis with disabilities in Minnesota, it is an issue made more important because Minnesota is home to the largest Somali refugee population in the country, at more than 32,000.
“It is tough because we try to avoid the stigma that it is even associated with any weakness whatsoever,” said Ahmed Ismail Yusuf, whose book “Somalis in Minnesota” documents the immigration of Somalis to the state.
Yusuf works at a clinic that sees Somalis, often at the height of a mental health crisis. “At times, the affliction itself overwhelms them so then they have to seek some kind of relief,” he said.
Coming from a war-torn region with little faith in corrupt government, many Somalis may resist seeking government resources available to them in the west.
“I see some Somali here, they are closed, they are not open to other people,” Ibrahim said. “If you are not open to other people, you will not know what you need. You will not get what your child needs.”
A disability advantage?
The Dadaab refugee camp in Kenya, 60 miles from the Somali border, is the largest contained refugee camp in the world, serving people mostly from neighboring Somalia. The Oxford University-based Forced Migration Review noted that people with disabilities, especially children, often face frequent beatings, stonings and verbal abuse in the camp. Mothers who give birth to children with impairments are often abandoned by their husbands.
A 2007 study by a British researcher found that Somali refugees in London’s Camden district made considerably less use of community mental health resources because of the brand attached to mental illness.
While a disability in a home country or a refugee camp may prove a liability, it may provide an opportunity in the United States. John Keller, director of the Immigrant Law Center of Minnesota, remembers one Somali client several years ago who was saved from deportation because he had a disability.
“We were able to argue that he should not be sent back because there were no resources available for him to live,” Keller said.